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See also Articles about Epilepsy |
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The Importance of Genetic Privacy
A speech and paper authored by Dr. Yerby, presented to the medical staff of the Sisters of Providence Hospitals on February 4, 1997: Information about what has already happened is not the only aspect of one's health which is no longer strictly privileged. Information about your future health in the form of genetic information is also vulnerable. Genetic information includes information about genes, gene products, or inherited characteristics that may derive from the individual or family member. While the latter has always been available, the former, information about an individual's specific genes, will soon become readily obtainable. It is this important change, the ability to collect predictive information in the form of human genes with their implied prognostic value, that places us all at risk. The risk is for new and serious forms of personal discrimination, and the risk of impeding medical science from utilizing this information for the design more effective health interventions. (1998) MANAGED CARE: Historical Development, Ethical Dilemmas and Potential Rectification A Primer on the Federal Budget Process
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